Yes, yes, yes! I finally have some good news for once!! And not only that, but there's A LOT of good things to update on!!
For those of you that have watched my latest YouTube videos, you know that I am currently in the hospital.
I got admitted on December 3rd with 25% PFTs, weight was 103, O2 was 89/90, and I was running a slight fever.
It is now December 12 and my PFTs are 41%!!!!!!!!!!!!!!! YAYAYAYAYAYAY!!! Unbelievable! That is the highest that my numbers have been in montthhssss. I was so surprised. I am feeling SO much better than when I came in, obviously. My weight has gone up to 106. My O2 is about 96% on room air during the day. It still drops to the low 90's at night.
I got an ultrasound last week because it feels like I have kidney stones, and sure enough, there's some on each side. They're currently pretty small right now and aren't blocking anything, so that's good. I have to make an appointment with the urologist and see where we'll go from here.
My sugars were a bit off and there was a higher amount of protein in my urine so I had to do a glucose test and everything came back normal....more amazing news!! I would have been incredibly upset if I found out that I have CFRD (Cystic Fibrosis Related Diabetes). I would deal with it and do whatever is necessary, but don't I have enough going on already?
This will be my last stay at Bronson Methodist Hospital. I am being discharged on Thursday and will have my first appointment at University of Michigan on Friday. I am nervous, but I am also ready. I think it will be good for me to be at an adult clinic. It's going to be incredibly hard though. I've been coming here for 18 years. For the past 6 years I have spent countless days in the hospital. Over the past year I have been hospitalized 7 times which each stay being 10 days or more. After all of that, you tend to grow close to a lot of the people that work here. Nurses, respiratory therapists, child life specialists and even the transport and housekeeping people. Heck, I even know the food service just by their voice. I've already had to say bye to some of my favorites. I'm trying to get a collection of pictures of as much people as possible. BUT, this doesn't mean that I won't be coming in to say hi. There's no way that I couldn't. These people are my family. Speaking of pictures, I drew some artwork that will be displayed in the Bronson art gallery so there will always be a piece of me with you all! Thank you all so so so much for everything you do. Everything from trusting me to take my medications on my own to bringing me candy from the nurses lounge. There's no way I could repay any of you. I will miss you all so much, but this will be a new chapter in my life that will hopefully be just as rewarding.
For those of you that have watched my latest YouTube videos, you know that I am currently in the hospital.
I got admitted on December 3rd with 25% PFTs, weight was 103, O2 was 89/90, and I was running a slight fever.
It is now December 12 and my PFTs are 41%!!!!!!!!!!!!!!! YAYAYAYAYAYAY!!! Unbelievable! That is the highest that my numbers have been in montthhssss. I was so surprised. I am feeling SO much better than when I came in, obviously. My weight has gone up to 106. My O2 is about 96% on room air during the day. It still drops to the low 90's at night.
I got an ultrasound last week because it feels like I have kidney stones, and sure enough, there's some on each side. They're currently pretty small right now and aren't blocking anything, so that's good. I have to make an appointment with the urologist and see where we'll go from here.
My sugars were a bit off and there was a higher amount of protein in my urine so I had to do a glucose test and everything came back normal....more amazing news!! I would have been incredibly upset if I found out that I have CFRD (Cystic Fibrosis Related Diabetes). I would deal with it and do whatever is necessary, but don't I have enough going on already?
This will be my last stay at Bronson Methodist Hospital. I am being discharged on Thursday and will have my first appointment at University of Michigan on Friday. I am nervous, but I am also ready. I think it will be good for me to be at an adult clinic. It's going to be incredibly hard though. I've been coming here for 18 years. For the past 6 years I have spent countless days in the hospital. Over the past year I have been hospitalized 7 times which each stay being 10 days or more. After all of that, you tend to grow close to a lot of the people that work here. Nurses, respiratory therapists, child life specialists and even the transport and housekeeping people. Heck, I even know the food service just by their voice. I've already had to say bye to some of my favorites. I'm trying to get a collection of pictures of as much people as possible. BUT, this doesn't mean that I won't be coming in to say hi. There's no way that I couldn't. These people are my family. Speaking of pictures, I drew some artwork that will be displayed in the Bronson art gallery so there will always be a piece of me with you all! Thank you all so so so much for everything you do. Everything from trusting me to take my medications on my own to bringing me candy from the nurses lounge. There's no way I could repay any of you. I will miss you all so much, but this will be a new chapter in my life that will hopefully be just as rewarding.
Miss you!!!!
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