My weight was down to 102 from 106 at my last appointment. My Pulmonary Function Test's were 27%. O2 was running about 92 and heart rate was 109ish. We decided to continue with what antibiotics I was doing and if by the 16th I didn't feel any improvement, then we would switch them. Dr. Simon called me on the 16th and told me that the culture just came back and said that my sensitivity to antibiotics changed and we needed to switch them. We stopped the Imipenem and I am now doing IV Tobra every 24 hours and IV Ceftazidime every 8 hours. I literally just did my first dose, so I'm still not doing any better. Hopefully I'll start to notice improvement over the weekend.
As of right now, I am really not doing too well. My O2 has been running about 90 and my heart rate has been 120ish. I'm having a difficult time with movement and even the slightest walk will make my heart rate sky rocket and my O2 drop. I've been running fevers again and it was 102 last time I checked. My weight is awful. I checked it earlier and it said 97 pounds...97...
University of Michigan has this website called MyUofMhealth.org where you can view previous and upcoming appointments, view lab results, refill prescriptions, write the doctor a note, cancel appointments and blah blah blah. My blood labs came back and my white blood count is 15..a normal is about 4-10. Dr.Simon said that this is because of infection and anemia, which I now have due to my low potassium and low magnesium from my kidneys.
I go back January 31st.
January 16th- Sinus appointment with Dr. Zacharek
Sinus surgery is planned to be scheduled for mid-February/early March. I have to wait for the surgery scheduler to call me. He's going to fix my deviated septum, remove the massive amount of scar tissue, and open up my Maxillary sinus on the right side because it's completely closed off. There's not much sinus buildup, which is amazing...one less thing to worry about. He said that the surgery will take about two hours and will be a bit rough afterwards. He is having an anesthesia consultant talk with my doctor about making sure that I'll be fine during surgery since my PFTs are so low. Dr. Zacharek told me that for surgery, they consider 60% PFTs to be a C/B- soooo yeah. I'm not worried about the anesthesia though because I've always done okay with it. I have to have oxygen on for a bit afterwards, but have never had any problems relating to the anesthesia. BUT my last sinus surgery was a disaster, so I'm a bit nervous about that. I have a different ENT this time, so we'll see how things go.
Okkkk, so for some exciting news!! I bought Lindsey Stirling tickets for March 16th! Weeee!!! I went to a concert on her first tour and really am looking forward to going again. I'm going with my brother, our best friend, and hopefully my brothers girlfriend.
Also, Joshua got out of the hospital two days ago :) He went in January 6th and was discharged January 16th. He's currently on home IV's and is being treated for infections.
I'm really really tired and need a hot bath, some Mountain Dew, and a good nights sleep.
I've had a bit of insomnia this past week and haven't gotten more than a few hours of sleep every night. I'll try to go to bed, but I just can't. I fell asleep around 1:30 AM the other morning and woke up at 4:30 AM...no matter what, I just couldn't fall back asleep. Its been a repeat of this and my body really just needs to some rest.
Sinus Surgery September 2011
While waiting for the ENT
Last Lindsey Stirling concert